Name:  Lisa DeGirolamo Spiegel Entered site at: 8/18/2010 11:33:25 PM

Thanks to all who came out to our 3rd. Motorcycle Ride and all who helped behind the scenes.For all those who helped setup the ride to the businesses who donated gifts. Thanks to the State Troopers and the spotters who gave us a safe ride. Lisa
Homepage: 
Address: Milford , Ct.
U.S.A.
 
Name:  LOU Entered site at: 5/14/2009 10:53:21 PM

Aimee, I hope that you feel better, and I pray that you beat this , you are one of the strongest people I know ! I think of you often and hope you are o.k. , I miss you and wish nothing but the best , on every step throughout your life . <3 <3 <3 Louie
Homepage: 
Address: Detroit
U.S.A
 
Name:  lou Entered site at: 4/29/2009 1:37:16 PM

Aimee stay strong , live your life and always love family. Bree loves you so much take great care of her, and yourself. Goodbye!!! LOUIE ***
Homepage: 
Address: monroe
usa
 
Name:  Mary Klein Entered site at: 12/5/2008 9:16:55 PM

My 75 year old father was diagnosed with the most severe form of scleroderma in February 2003. His symptoms progressed rapidly and he lost his fight exactly 2 years later. I am so encouraged that over the last five years so many new treatments have become available for scleroderma sufferers. The awareness being raised has made it possible to diagnose the disease in it's earliest stages. My father had very few options, as his diagnosis came around the same time he went into renal failure, followed shortly thereafter by pulmonary hypertension. Treatments were costly and hard to find. Today, thank God, most scleroderma patients have many more options and a much brighter outlook. Each one of you, patients and your families, are in my prayers.
Homepage: 
Address: Monroe, CT
USA
 
Name:  Aimee Turiano Entered site at: 6/4/2008 9:40:24 PM

I want to thank ASFSR for all thier love and support. I suffer from this disease, and the only way I get through this is the love from my family and friends. Bree I love you more than words can say, and I want to thank you for your courage and uderstanding. It's very hard for such a young lady to see her mom ill. If any one needs to talk please call me any time. Positive energy is very helpful. And what you surround yourself matters. I am reading the book
Homepage: 
Address: Monroe CT
US
 
Name:  Breeann Turiano Entered site at: 5/4/2008 7:08:14 PM

Dear Mom, I hope you begin feeling better soon.I am so sorry you have to face this horrible disease, and nobody should have to. Once again it is time for us all to take this disease head on and tear it down until it is nothing anymore. Mom, this disease is all trying to destroy our lives but it could never do that it isn't stronger than our love for eachother and I hope you realize that. Feel better as soon as you can so that we can have some fun! I LOVE YOU SOOOOOO MUCH!!!!!!!! Your Daughter, Breeann
Homepage: 
Address: Shelton CT
United States
 
Name:  Samantha Entered site at: 10/4/2007 12:54:24 PM

I have a 10 year old daugher that was diagnosed with linear scleroderma four years ago. My daughter is still taking medications, but new spots on her skin keep occurring. Her legs are now covered with bans of scar tissue. I know that its pretty rare in children and I'm wondering if anyone out there has any advice for me or any type of treatment they've tried that works well.
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Address: 
 
Name:  Wes Linda Entered site at: 9/25/2007 11:49:47 AM

Check out this new resource for patients and physicians within the Scleroderma Community.
Homepage: http://scleroderma.jhmi.edu
Address: Baltimore, MD
USA
 
Name:  scott and christine yitts Entered site at: 9/12/2007 9:13:32 AM

Aimee, I did a search of your name and found this web site. I wish I knew. Now I know why you have been on my mind everyday. Please write at the above e-mail if you get this. Love-Scott Christine Yitts
Homepage: 
Address: derby
usa
 
Name:  LOU FRROKAJ Entered site at: 5/16/2007 4:13:40 PM

I would like to tell my great friend ,Aimee Turiano, that she is in our prayers and to always remember how much she is loved by her Breeann and her Louie. We will always be here for you stay strong and keep your head up !!! LOVE ALWAYS , BREE & LOU ***
Homepage: 
Address: DERBY CT.
USA
 
 
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