American Society For Scleroderma Research

Dates To Remember

What is Scleroderma?

We have several fantastic events coming up! Something for everyone to enjoy! Please mark your calendar now so you don't miss out! More details to follow.

August 4 thru 8, 2008
The International Workshop on Scleroderma Research
http://www.sclerodermaworkshop.org/

ASFSR is a proud Corporate Sponsor of an international symposium taking place in the United Kingdon this fall. The International Workshop on Scleroderma Research will be held at Trinity College in Cambridge, England, from August 4 thru 8, 2008. It is a biennial event that will be attended by researchers and physicians from around the world. The conclave is specifically designed to share knowledge and information and to further research efforts as to the cause and a cure for this disease.

October 12, 2008
5 K Walk - Lake Side
Wolf Park
Great Hollow Lake
454 Purdy Hill Road
Monroe, CT

November 8, 2008
5th Annual Dinner
Liedle's Catering Hall
Stratford, CT

"Joey and Maria's Comedy Italian Wedding"
Full night of fun starting at 6:00 - 10:00 PM
Cocktail Hour 6 - 7 PM
Tickets - $50.00 per person - Purchase Tickets Here

The wildest interactive comedy in the country is here to make your night a memorable one! Join Joey, Maria, and their two crazy families for a night of singing, dancing, dinner, drinks, and a few surprises. You'll be a real guest at an anything but traditional Italian wedding with the two wackiest families this side of Little Italy!!

Joey and Maria have been married in front of thousands of people across the country since 1993. The production has helped to raise over ten million dollars for charities and organizations through its unique fundraising and corporate events.

All logos, images, and shows are trademark and copyright of Dillstar Productions

Cookbooks are here!

A cookbook to benefit Scleroderma Research. FLAVOR-ITES designed in a 3-ring binder for easy recipe removal or additions, contains 300 recipes from soup to nuts along with pantry basics, measurements & substitutions, cooking terms, helpful hints and quick fixes. All proceeds from the sale of the cookbook will go to the American Society for Scleroderma Research. Buy on-line $25.00, plus $4.95 per Book Shipping and Handling. or mail Check or Money Order to:

ASFSR C/O Linda Ann Turiano
31 Patmar Terrace
Monroe, CT 06468
Phone:(203) 459-9928 or (203) 395-8789
Email: cookbookdonation@asfsr.org

2008 Sock HopClick Here.

2007 December Breakfast with SantaClick Here.

2007 Annual Fundraiser DinnerClick Here.

2007 5K Walk - Lake SideClick Here.

2007 Sock HopClick Here.

2006 Annual Fundraiser Dinner Click Here.

2006 Kentucky Derby Fundraiser Click Here.

2005 Annual Fundraiser Dinner Click Here.

2005 Kentucky Derby Fundraiser Click Here.

Scleroderma is a debilitating and too often fatal auto-immune disease that affects 300,000 people across our country. Scleroderma itself means "hard skin". The hardness is caused by increased production of collagen and other proteins that cause skin thickening and replaces normal skin structure with scar tissue. Scleroderma can be a devastating disease and the same thickening process may occur in the blood vessels, the lungs, the kidneys, the intestinal tract and other key organs.

Research over the last two decades has lead to improved treatment for scleroderma and has improved both survival and function for individuals with this disease. While this improvement is welcome, the fact is there is no cure and that individuals continue to be disabled and die from the disease.

Living with Scleroderma
Coping day-to-day with scleroderma ~ Read their stories.

We Want to To Hear Your Story
If you have a story to tell about yourself or a loved one that has battled scleroderma, we want to hear it! Submit your story to benefit those looking for support. Please email to stories@asfsr.com

In Memoriam
ASFSR has lost many friends to this disease. They continue to inspire us to succeed in our mission.

Paul H. Fornier

Dennis Banks

$100,000.00 Check donation presented to Boston University Medical Center Scleroderma Research Department. From left to right: Dr. Lafyitus, Bob DeCesare, Vice President ASFSR, Joe LoSchiavo, President ASFSR, Carmen J. Cartiglia, Treasurer ASFSR, Joy LoSchiavo, Board Member ASFSR, Lou Turiano, Board Member ASFSR