American Society For Scleroderma Research

Dates To Remember

What is Scleroderma?

Support Group Meeting Schedule:

December 11, 2008
January 8, 2009
February 12, 2009

We have several fantastic events coming up! Something for everyone to enjoy! Please mark your calendar now so you don't miss out! More details to follow.

December 6, 2008
Breakfast
with
Santa
From 9am - 12 Noon
Christ the King Church
4700 Madison Avenue
Trumbull, CT

Cookbooks are here!

A cookbook to benefit Scleroderma Research. FLAVOR-ITES designed in a 3-ring binder for easy recipe removal or additions, contains 300 recipes from soup to nuts along with pantry basics, measurements & substitutions, cooking terms, helpful hints and quick fixes. All proceeds from the sale of the cookbook will go to the American Society for Scleroderma Research. Buy on-line $25.00, plus $4.95 per Book Shipping and Handling. or mail Check or Money Order to:

ASFSR C/O Linda Ann Turiano
31 Patmar Terrace
Monroe, CT 06468
Phone:(203) 459-9928 or (203) 395-8789
Email: cookbookdonation@asfsr.org

2008 Motorcycle RideClick Here.

2008 Sock HopClick Here.

2007 December Breakfast with SantaClick Here.

2007 Annual Fundraiser DinnerClick Here.

2007 5K Walk - Lake SideClick Here.

2007 Sock HopClick Here.

2006 Annual Fundraiser Dinner Click Here.

2006 Kentucky Derby Fundraiser Click Here.

2005 Annual Fundraiser Dinner Click Here.

2005 Kentucky Derby Fundraiser Click Here.

Scleroderma is a debilitating and too often fatal auto-immune disease that affects 300,000 people across our country. Scleroderma itself means "hard skin". The hardness is caused by increased production of collagen and other proteins that cause skin thickening and replaces normal skin structure with scar tissue. Scleroderma can be a devastating disease and the same thickening process may occur in the blood vessels, the lungs, the kidneys, the intestinal tract and other key organs.

Research over the last two decades has lead to improved treatment for scleroderma and has improved both survival and function for individuals with this disease. While this improvement is welcome, the fact is there is no cure and that individuals continue to be disabled and die from the disease.

Living with Scleroderma
Coping day-to-day with scleroderma ~ Read their stories.

We Want to To Hear Your Story
If you have a story to tell about yourself or a loved one that has battled scleroderma, we want to hear it! Submit your story to benefit those looking for support. Please email to stories@asfsr.com

In Memoriam
ASFSR has lost many friends to this disease. They continue to inspire us to succeed in our mission.

Paul H. Fornier

Dennis Banks

$100,000.00 Check donation presented to Boston University Medical Center Scleroderma Research Department. From left to right: Dr. Lafyitus, Bob DeCesare, Vice President ASFSR, Joe LoSchiavo, President ASFSR, Carmen J. Cartiglia, Treasurer ASFSR, Joy LoSchiavo, Board Member ASFSR, Lou Turiano, Board Member ASFSR